Central Sensitivity Syndrome | A Survivor's Guide
Central Sensitivity Syndrome & Central Sensitization | A Survivor's Guide
"E'er one acquires what one desires if that one is amenable to await and cultivate for it's transpires."

Latest Blog

Sugar Sets Me On Fire (SOLVED)

Another medical mystery solved. For the past 10+ years I have not been able to consume even 1 gram of refined sugar without four days of burning hell. Eventually, my sugar sensitivity became so bad that I could not have high fructose corn syrup either. Then in time maple syrup,…

Methylenetetrahydrofolate Reductase Deficiency

I finally received my Whole Genome test results (https://sequencing.com/?rfsn=4541759.8a2bfe). It’s a wilderness of variants. I’m putting my best doctors in the driver’s seat to help interpret the results at length. However, there is one major likely candidate that “could” explain all of “my” CSS symptoms in one if severe enough,…

Dantrolene Cured My Myofascial Pain Syndrome

I recently underwent some genetic testing for certain types of rare neuropathies. One of the mutations was in my RYR1 gene, which suggested that I may have some symptoms of Central Core Disease. Looking at some of the known symptoms I realized that I did indeed have some of those…

Treating Medication-Induced Cognitive Decline & Mental Exhaustion – SOLVED

I’ve been on Flexeril/Cyclobenzaprine for nearly 20 years. It’s the only muscle relaxer that has ever worked for me, and I have tried seemingly everything; prescription, and supplements/herbs. Without it, all my muscles are so tight I can bearly move, the spasms are frequent, and one subtle wrong move and…

Dementia Like Brain Fog

It was getting so bad. I felt like mind mind was slowly disappearing more everyday. I was so easily jumbled and confused on a regular basis that I was looking into assisted living. I just didn’t feel safe and competent anymore. I couldn’t see images in my head anymore, if…

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