A Fibromyalgia, Chronic Fatigue & Central Sensitivity Syndrome Online Resource
"E'er one acquires what one desires if that one is amenable to await and cultivate for it's transpires."

COURAGE, PERSISTANCE, DEDICATION & HOPE.....  

________________

Home - Overview FMS, CFS & CSS
*Fibromyalgia (FMS)
*Chronic Fatigue Syndrome (CFS)
*Facts - FMS & CFS
*Central Sensitivity Syndrome (CSS)
*Familiar Symptoms

FMS, CFS & CSS Overview
*Other illness that may occur with FM or CFS
*Central Sensitivity Syndrome
*Research Continues

Central Sensitivity Syndrome Home

Hypersensitive Senses
*Touch
*Sight
*Hearing
*Smell
*Taste

Hypersensitive Organs, Tissues, Joints Etc.
*Skin
**External Skin
**Internal Skin
**Oral Skin or Tissues
*Eyes
**Hypersensitivity to Light
**Eyewear
**Visual Distortions
**Pain – Headaches
*Heart
*Digestive System
**Irritable Bladder
**Irritable Bowel
**Liver
**Stomach
*Joint & Bone Pain
**Knees
**Ankles
**Hands
**Hips
**Teeth
**Coccyx/Tailbone
**Spinal

Muscular Hypersensitivity
*Head - Headaches
*Neck
*Jaw
*Cranial – Eyes & Face
*Gums
*Shoulders
*Upper Back
*Middle Back
*Lower Back
*Endometriosis
*Hands
*Forearms
*Fingers
*Buttocks
*Calves
*Feet

Nervous Hypersensitivity

Temperature Hypersensitivity
*Cold
*Hot
*Humidity, Precipitation & Barometric Pressure Changes
**Barometric Pressure
**Humidity
**Precipitation

Chronic Fatigue

That in Which Drives My CSS
*Sleep Disorder
*Food
*Medications
*Stress

The Assumed Cause of My Central Sensitivity Syndrome

Therapies to Consider
*Myofascial Release Therapy
*Exercise
*Weight Loss
*Heating Pads
*Stretching
*Alpha Stim
*TENS Unit
*Cold Packs
*Dextromethorphan Hydrobromide
*Guaifenesin
*Remove Caffeine & Artificial Sweeteners
*Flexeril
*Klonopin
*Vitamin B Deficiency
*Energized Water
*Multiple Chemical Sensitivity - Allergist 
*Photoreactivation Therapy
*Psychological Counseling
*My Mental Cure Alls
*Endorphins
*Aleve
*Acupressure & Acupuncture

Past Articles
*Fibromyalgia & CFS Health
*Health & Wellness
*Permeability of the Osmotic Blood-Brain-Barrier
*Emerging Concepts in the Neurobiology of Chronic Pain
*Biofeedback/relaxation training and exercise interventions for Fibromyalgia
*Compilation of links regarding CSS, FMS, MSS, and CFS

Minnesota Chronic Pain Resources
*Chronic Pain Specialists I Advocate
*Chronic Pain Programs & Clinics I Advocate
*Physical Therapists I Advocate

Related Links

Hypersensitive Organs, Tissues, Joints Etc.

Skin: My skin is sensitive to any form of touch as mentioned above under Touch. Caressing can burn, a poke is like a punch and a hard poke or bump leaves a bruise for two weeks at least. An innocent light itch leaves a red mark for hours and looks more like a rash. My skin is very very dry all of the time and can get scaly if I do not use lotion daily.

Solutions & Methods

External Skin

  • No itchy materials (clothing).
  • No or very thin breathable underwear to avoid sweating and chafing or sensitive skin.
  • When bathing put a couple cap fulls of Olive Oil in your bath water if you do not have a filter for your faucet to remove chlorine in the water and other chemicals that increase dryness. Try putting some Olive Oil in your body wash as well.
  • Put a Water Filter on your bathroom faucet to help with dry facial skin and hands. This can also prevent acne if putting lotion on your face after washing is your method of keeping your face moist.
  • If your facial skin is red or blotchy from dryness, have very dark circles under your eyes and you can't seem to find any makeup that will cover the facial results of your condition I advocate trying Sheer Cover by Guthry Renker.
  • Keep your shoes loose and wear higher socks to prevent blistering. Tennis shoes work best for me.
  • Shea Butter is the best I have used to keep skin moist and healthy and it lasts longer than most lotions.
  • Wear loose clothing around the waist and ware a bra one size (36 or 38 instead of a 34) higher than usual.

Internal Skin or Tissues

  • If you are sensitive to medications or foods or think you might be see below under Medications and Diet.
  • Give your body a break, drink bottled water. If the chemicals in tap water are used to kill biological organisms than what do you think it does to your body?

Oral Skin or Tissues

  • Stay away from hot, spicy and salty foods.
  • Use a mild mouthwash (kids brand).
  • Use a soft bristly tooth brush.
  • Take it easy on carbonated drinks and citric drinks like lemonade and orange juice.

Eyes: My eyes are so sensitive and they only seem to be getting worse with all other the rest of the hypersensitivities.

Hypersensitivity to Light:

Solution & Methods

  • Wear jet black sunglasses outside, or brown, when needed or all of the time. Keep them loose fitted to prevent headaches from pressure.
  • Keep your blinds closed at home to give them a rest at the end of the day and in the morning, but use UVA lights, natural light, or somewhat brighter lights in your home that you can turn on little by little to get your eyes ready for the outdoors and prevent the shock of direct sunlight.

Astigmatism & Contacts: My astigmatism is unusually bad and rare. There are only two companies in the world that make contacts for my eyes. Even with these contacts from these companies they still never sit still and my vision is still blurred quite frequently from the movement.  Current going rate to Lasik my eyes $6,000. Current cost for contacts every six month $240.

Solution & Methods

  • If your vision blurs from contacts not sitting still and can cause headaches make sure you reduce the light sensitivity you have by wearing sunglasses at least out doors.
  • Try different brands until you find one that fits best. Avoid hard contacts at all cost to prevent eye irritation.
  • Keep eye drops with you at all times if dry eye or redness is a problem for you, but make sure those particular drops do not irritate your eyes at all or this can lead to headaches.

Eyewear: I need the special lenses, you know, because mine are far to thick to fit in the pretty gasses.

Solution & Methods

  • Buy lighter glasses to prevent too much pressure on the face and head.
  • Wear your glasses at a comfortable looseness.
  • Get scratch proof and glare proof to reduce squinting.

Visual Distortions: My distortions are partially due to floaters and partial due to my sleep problem.

Solution & Methods

  • If you think you have floaters see your eye care professional to ask about options.
  • Try medication or herbal alternative to help you sleep more efficiently.
  • Try a new mattress or pillow to improve your sleep. Tempur-Pedic is my God sent.

Pain – Headaches: This is the monster that ruins not just my day, but sometimes a whole month.

Solution & Methods

  • See the directly above information to get some ideas.
  • Avoid headband, wearing your hair back in braids or tight pony tails.
  • Avoid wearing hats.
  • Be weary of barrettes.
  • Take it easy on heavy necklaces or earrings.

Heart: My heart only poses a problem when testing out medications in the past.

Solution & Methods

  • If a medication has side effects that can harm the heart make sure your doctor is keeping and eye on you with frequent EKGs.
  • If your heart feels like its racing tell your doctor immediately.
  • Learn how to take your own blood pressure or find a pharmacy nearby where you can regally check your blood pressure with an automatic blood pressure machine to make sure your vitals are normal. If not tell your doctor right away, do not delay or you could end up with permanent damage or worse a heart attack.

Digestive System:

Irritable Bladder: This was not something that came after I had my daughter, but rather goes back to my childhood. If I held it for to long the control was no longer there. To day I have to go very frequently.

Solution & Methods

  • When you go somewhere new make sure you know where the restroom is right away.
  • Make sure you wipe with the part of the toilet paper that was not exposed to falling dust to prevent infection. You will be more prone to infection because you wipe more then most and irritate the skin more. At home stick with a soft toilet paper even a moist toilette option.
  • If you drip after going (after your pants are back on), wipe first, stand up , move around for a second or two and then sit back down and try pushing again to make sure there is nothing left half way between your bladder and the exit that may come out once you begin to walk out of the rest room or when you sit back down later.
  • Don’t drink anything three hours before bedtime is possible.
  • If your bladder seems to hurt or burn after eating spicy or acidic food or drinking spicy or acidic beverages try avoiding them for a week to see if this improves. DO this even without a burning sensation can also help with helping you hold “it” longer. Try this method if you just want to be able to hold it longer.
  • Learning how to do simple exercises called kegels, after the doctor who developed them, can keep your pelvic floor muscles strong and healthy. This simple exercise can be done at any age, anytime, discretely in just about any position.

Irritable Bowel: For me it’s chronic constipation to the point of severe back pain. This pain can render me unable to bend or sit. Dairy and soy based foods lead to severe diarrhea in which transforms more into the symptoms of food poisoning. IBS Article

Click Here for the IBS Article - More Info

Solution & Methods

  • Try Zelnorm or stool softeners/laxatives and see what works best for you. If you have not gone in a week, it’s time to take something.
  • If fiber agrees with you, it does not agree with me, than eat foods high in fiber or take fiber supplements.
  • If spicy foods agree with you, or dairy, eat more of these foods.
  • A good sweaty workout in the morning targeting the core of your body is good for getting things moving.
  • If you get indigestion allot stay away from acidic and spicy foods.
  • If you have chronic diarrhea stay away from spicy foods and dairy/soy products.
  • Read the book “Eat Right 4 Your Blood Type”, it probably saved my life.

Liver: My liver rejects and can not process ANY medications not even Tylenol. I can not take any medication for any of my ailments because of this. This problem is chemical and digestive. My digestive system also has severe trouble digesting certain foods in which is a digestive enzyme and hypersensitivity problem. With every medication I get the “Severe and Rare Sid effects”. These side effects are more debilitating then the condition I am trying to treat with that one drug. Symptoms like blackouts, paralysis, vomiting, nightmares and possible heart attack.

Solution & Methods

  • If you can not take pain meds try working out once a day in the morning such as weight training and aerobic exercise to kick up Endorphins. This is the only way I can tolerate my pain with out meds. Thirty minutes to an hour is good.
  • If Advil, Ibuprofen or Tylenol aren’t seeming to work for you try Aleve before you try something more addicting. Naproxen (ingredient in Aleve) is the only thing that helps my headaches though I do have to take about 4 at a time and this does cause seemingly permanent damage to my stomach lining so I ONLY take them when I can not deal with the magnitude of the headache.

Stomach: I am permanently on a vegan only diet and there are even fruits, gains and veggies and can not have. After I eat meat I feel so tired I can not keep my eyes open, can not talk and can barely aspirate (breathe). I get very dizzy, nauseous and lightheaded along with a double vision. Dairy and soy makes me nauseous, creates food poisoning/stomach flu type symptoms in which I can not even stand up the whole next day due to the fatigue of the entire purging process. Dairy and soy also give me severe indigestion to the point of blindness from pin and inflicted bodily harm such as digging my nails into the skin. I have given birth and these attacks are worse than labor and use to happen to me twice a month every summer month. Heat is a very big trigger for the dairy/soy attacks.

Solution & Methods

  • Avoid medications that can cause stomach irritation such as Ibuprofen, Aleve, Zanaflex etc. for this will only increase your symptoms especially if you take these regularly.
  • Read the book “Eat Right 4 Your Blood Type”, it probably saved my life. Avoid the foods it tells you to and if you can only eat foods that are beneficial to you, listed in the book, and try this for a couple of weeks and see if you notice a huge difference.
  • See Bladder and Bowel above for more info.
  • My cure for nausea brought on by certain foods and the reactions I have from foods such as dizziness is Ginger. Take a capsule or drink ginger tea. It works wonders and quickly. Also for nausea press and rub the webbed skin between your thumb and your index finger. A form of acupressure.

Joint & Bone Pain: My joint pain is comparable to Arthritis and reading below you will see why. Orthodics (special inserts for your shoes that are not store bought) I requested from my physical therapist took me from being cane dependant to cane free. If you have pain in the lower back/glutes area and or walk on the inside/outside of your feet orthodics could help you in a supreme way. Normally a physical therapist will have an electronic device to graph how you stand against how you should stand telling him exactly what kind of inserts you need. If the inserts are to “hard” say something. The therapist may have other brand options. It’s best to wear them with running shoes or something with allot of cushion that can reduce impact.

Knees: Physical Therapy helped me with learning how to bend to pick things up and what exercises to avoid hurting my knees.

Solution & Methods

  • Bend only with your legs shoulder length apart ort more.
  • Avoid high impact exercise like squats, jogging and running.
  • If your knees hurt to bad to walk by the end of the day and you find yourself stuck somewhere in to much pan to walk get a folding cane you can carry with you.
  • It’s hard, but if I can loose 65lbs in eight months with my disability (exercise and a moderate calorie diet) then almost anyone can with help. Try physical therapy or even a personal trainer at a gym. I hear great things from some of the diet programs I see on television as well like Weight Watchers. Hoodia is a blessing and so is Lipo-6 is you can tolerate caffeine. To reduce lower joint pain reducing weight is a huge help. After I gained 50lbs with my pregnancy and was bedridden through most of it I was in a wheelchair off and on for a year and on a cane for nine months. Work hard on those muscles around the knees to help support the joints.

Ankles: Over f our sprains, one fracture, one torn ligament, a cast and surgery. While I was great at hitting the ball in softball when I was little, I could not run the bases anymore and had to just stop. The muscles around my ankles were weak just like all of my other muscles from my sleep disorder mentioned under Sleep Disorder. I even wore high lace up boots for many years to prevent sprains and tearing ligaments. Uneven sidewalks are still me enemy and so are any shoes except flats.

Solution & Methods

  • Work those muscles around the ankles. See a Physical Therapist.
  • Wear flat shoes to avoid sprains and pain.
  • Watch where you are walking. It’s ok to look down walking down the street. It’s amazing some of the stuff you find.
  • If it’s really bad try high lace up boots for support. For men Jungle Boots (Combat Boots) work great.
  • Stick to the side walks and avoid uneven ground.

Hands: Oh the pain. Here is the blunt on the joint pain right here. My hands cramp up so I can only type with six fingers, three on each hand. I can barely right at all and picking up anything over 1 pound is painful and I have the likelihood of dropping it. Picking up a grocery bag with 5 or more pounds of groceries in it will make the handles feel like razorblades.

Solution & Methods

  • Try Aleve.
  • Don’t pick up anything over a couple of pounds.
  • If you have to pick up anything over a couple of pounds wear gloves. The gloves I use are part spandex, they breathe well and stretch, and have leather strips for grip and are called Isotoners. They are actually Equestrian gloves.
  • Try heated/melted paraffin wax and dip your hands in for a few minute to help dull the pain. Give your hands a break with typing and writing.

Hips: This was another reason I was on the cane and in the wheelchair, mentioned above under Knees. This pain gets to me sitting, standing and walking. I can only walk for 1 hour to 30 minutes pretty much the whole day. I can only sit for 15 minutes in a car and I can only stand for 5 to ten minutes only a few times period during the day. I wear down the second I get up in the morning so there is really no way for me to recuperate and get right back up in the middle of the day the same way I did when I first woke up. It’s all downhill after the AM.

Solution & Methods

  • See Knees for some helpful hints.
  • Don’t sit to long on anything to uncomfortable.
  • If you have to sit try using a foam set pad, preferably one with a handle that you can carry with you.

Teeth: I grind my teeth because of the pain and stress and this is really only at night, but the affects on my teeth are very noticeable. My teeth are constantly hurting (because the teeth are worn so far down the nerve is very close and susceptible to hot, cold and pressure).

Solution & Methods

  • Wear a mouth guard. If hard doesn’t work try soft. If making your own doesn’t work talk to your dentist about getting one professionally made. I actually had to create my own design because the rest were pushing on all the sensitive teeth and I would have a full fledge tension headache after have it in for only 5 minutes. What I have now is one inch long, soft and only sits on two bottom teeth. Just big enough not to swallow, barely.
  • If you have the financial option of having your teeth rebuilt to reduce sensitivity, do it. I need probably $20,000 of work done and I hardly have the financial capacity to do so with only being on disability benefits. SO if you have that option, jump at it.
  • Stay away from hard foods and candies.
  • Make sure you have a very good and attentive dentist.
  • Stay away from foods and beverages that are to hot or cold if that bothers you. This is common sense, but still worth mentioning.
  • Use Oragel during extreme cases.
  • Try Sensodine Toothpaste and do not spit it out right away, let it sit and sink in.

Coccyx/Tailbone: Sitting most of my adult life has left this bone not in its best shape and causes the tissue around it to be very sensitive. I sit on a device in which people who have broken their tailbone use until it heals. I have tried foam, plastic/inflatable, rubber and they all fall short somehow. Either they are not supportive enough or they are too hard. Read more about this under Buttocks. Orthopedic surgery to have it removed has been an option, but the doctor was sure it would only make matters worse in the long run.

Solution & Methods

  • Get a donut (what people get from their doctors when they break their tailbone). This will help you keep the weight/pressure off that area when sitting.
  • Do not sit for to long and never sit on anything hard for uncomfortable.
  • Do not slouch and sit up straight. Shoulders back, back stable, and off the tailbone.
  • Talk to your doctor about Cortisone Injections or the option of NSAIDs or nonsteroidal anti-inflammatory medications like Ibuprofen.
  • Have x-rays taken by an Orthopedic Specialist and ask if surgery is right for you.
  • See a Chiropractor who does Manual adjustments of the Coccyx.

Spinal: The center point f all my pain. It throbs continuously 24/7. It keeps me up at night and when I do sleep it causes me to have a strong lacking in restful and rejuvenating sleep. See Sleep Disorder. I also have scoliosis in which not only affects the muscles in my back from the misalignment and the muscles trying to compensate, but also from affects my hip and knee because the misalignment of my spine misaligns my hip causing me to put more weight on one side than the other.

Solution & Methods

  • Get corrective inserts for your shoes soft or hard tailored to fit you specifically or not. Whatever works best. This will help to correct your posture and put less pressure on your spine.
  • Get a cushion for your office chair/computer chair in which will push you into a correct posture throughout the day.
  • Sleep on your back at night unless it is painful.
  • Sleep on your side at night in the fetal position, but only if you have a contour pillow, supportive mattress and a pillow to be place between your knees for extra support of the spine.
  • See a Chiropractor.
  • See and Orthopedic Specialist to hear your options and to find possible other causes for your pain.
  • For neck pain due to looking at a computer monitor all day keep it at eye level.
  • For neck pain in the morning use a contour pillow at night and a heating pad in the morning.
  • Keep your mouse and keyboard low not high that will strain your neck.
  • See a Physical Therapist.

 

 

 

 

All information on this website is copyrighted and can not be copied and pasted onto another website with out the consent of the author or without linking back to this website by listing the source of this information. Copyright Dewarlorx.com 2007

Please do not contact the author with personal questions or other questions concerning this website unless you are a physician. If you have a side effect from one of these conditions and have found no resolution you can Email a request for remedies for this specific symptom and it will be placed on the site if the information is available. Again, not everything tried is on this site, but if you request it (jog her memeory) she will include it. Contact the author regarding redistribution of the information on this site by clicking here. If you have a request for information or questions concerning this website please email the webmaster by clicking here.

This Website is Featured on:

Fibromyalgia & Chronic Pain - Featured on City of HopeFibromyalgia - Featured on Co-Cure

   

Physicians - Contact the Author

 

A Fibromyalgia, Chronic Fatigue & Central Sensitivity Syndrome Online Resource - Copyright 2007